Adventures in KAndylaND

August: Our Family's Diaversary Month

August: Our Family's Diaversary Month

For every parent, the birth of their child is a significant month. But for the parent of a child with a rare disease, or a significant diagnosis, the month of diagnosis is also a time that is forever remembered. For some, especially in the diabetes world, we call this our "Diaversary". August is always a hard month for us because both of our children were diagnosed with a rare form of diabetes that month. Neonatal Diabetes

Miss Independence

The ear-piecing scream echoes in my head as I sit at the table watching her eat. She has a sweet angel-face on right now, but I know, like a light switch, she can easily flip on the face of discontent … Continue reading

I Can Do It Myself!

As Katie has grown up we have had both moments of clarity where we are absolutely sure she is displaying behavior that is typical for her age and moments if confusion where we are just not sure what’s normal. This … Continue reading
Background of a baby with the title Developmental Milestones in Neonatal Diabetes overlaying the picture. Logo of Babies with Diabetes

Developmental Milestones

It’s amazing how fast 3 months go by.  It seems like just yesterday, we were welcoming our little baby girl Katie into this world.  Now she is 3 months old and so far seems to be developing normally.  She smiles … Continue reading
Baby with bruised heels due to blood sugar checks

Highs and Lows with New Medicine

Katie was diagnosed with Neonatal Diabetes at 10 days old and started on Glyburide that very day. While we had a lot of experience with this rare disease with Andy, dealing with a newborn with diabetes was a different skill set altogether. . . Continue reading