Adventures in KAndylaND

August: Our Family's Diaversary Month

August: Our Family's Diaversary Month
For every parent, the birth of their child is a significant month. But for the parent of a child with a rare disease, or a significant diagnosis, the month of diagnosis is also a time that is forever remembered. For some, especially in the diabetes world, we call this our "Diaversary". August is always a hard month for us because both of our children were diagnosed with a rare form of diabetes that month. Neonatal Diabetes

Miss Independence

The ear-piecing scream echoes in my head as I sit at the table watching her eat. She has a sweet angel-face on right now, but I know, like a light switch, she can easily flip on the face of discontent … Continue reading

I Can Do It Myself!

As Katie has grown up we have had both moments of clarity where we are absolutely sure she is displaying behavior that is typical for her age and moments if confusion where we are just not sure what’s normal. This … Continue reading

Highs and Lows with New Medicine

Katie had bruised heels as a baby due to checking her blood sugar on her heels since baby fingers are too small to stick for blood sugar checks.
Katie was diagnosed with Neonatal Diabetes at 10 days old and started on glyburide that very day. While we had a lot of experience with this rare disease with Andy, dealing with a newborn with diabetes was a different skill set altogether. . . Continue reading