Adventures in KAndylaND

Closing the Gap: Is Gene Therapy Our Future?

There are two thoughts that ran through my mind when our doctor told us that our son had a rare genetic mutation: Which one of us gave it to him (or was it both of us)? – and Why can’t …

Closing the Gap: What the Research Says

Disclaimer:  The information shared in this post is in no way meant to be a diagnosis or treatment for you or your child’s condition.  Please know that our only intention is to share our story and help others see how …

Andy Sings

Out for our weekend drive and attempted to record Andy singing to the songs on the radio. He gets a little camera shy but I caught a little. Such a cutie!

My Heart 

Can’t get over how big he’s gotten. Just wanted to share a little smile today. This is Andy how he usually is – smiling!  Missed the date but as of January 24th he has been off of insulin now (takes …

Pretty Nails To Support Children with Disabilities

I knew I loved Jamberry nails long before I even tried them and long before I decided to sell them. Part of what I love about the company is that they are all about giving back to people in need. …

Towers of Pillows

Anybody who has a child on the spectrum or with SPD probably took one peak at that title and shook their head in understanding.  “Yep, my kid does that too” you’re saying.  Sometimes I look at Andy and just think, …

Katie’s New Diagnosis

This is an overdue post.  We’ve now been in the Cincinnati area for over a year and we have been slowly getting the kids settled into their new team of doctors at Cincinnati Children’s.  After meeting with the endocrinologist, neurologist …

Mom’s Bright Idea! Let’s Go For A Walk! 

If you are a parent of at least one child on the spectrum or with SPD or motor delays, you will no doubt relate to this story. When I see other children outside playing in their yards or close to …

Secrets of Expanding the 5 Food SPD Diet

Andy went through a phase when he was about 3 or 4 years old where he was a picky eater. He had the typical preschooler diet of chicken nuggets, macaroni and cheese, hot dogs, cereal and peanut butter and jelly. …

A Thought on Speech Delays

I love that I have discovered the stats on my blog now.  My favorite thing, right after looking at how many people have visited my site, is looking at the search terms that people have used to get here.  It …

Update

I know it’s been a while since I’ve done a major update.  Life has happened.  I have been back at work full time since August of 2014 and had a part time job that felt like a full time job …

Site Under Construction – Exploring the Purpose of this Blog

In the beginning, when I started this blog, the reason was to spread awareness.  I knew that my husband and I became frustrated for years by not being able to find information on the type of diabetes my son had.  …