Adventures in KAndylaND

August: Our Family's Diaversary Month

August: Our Family's Diaversary Month
For every parent, the birth of their child is a significant month. But for the parent of a child with a rare disease, or a significant diagnosis, the month of diagnosis is also a time that is forever remembered. For some, especially in the diabetes world, we call this our "Diaversary". August is always a hard month for us because both of our children were diagnosed with a rare form of diabetes that month. Neonatal Diabetes

Meeting with the Experts

Last week we had the advantage of traveling to Chicago to the second North American conference on Monogenic Diabetes. While there we had the privilege of meeting with Dr. Hattersley from the UK. He was very interested in our story … Continue reading

Going Up and New Families

Finally after nearly 3 months of dealing with lows, both kids are trending up in their blood sugars.  Noses are not visibly running any more on a daily basis and all stomach bug issues are gone.  Yesterday Andy had a … Continue reading

Highs and Lows with New Medicine

Katie had bruised heels as a baby due to checking her blood sugar on her heels since baby fingers are too small to stick for blood sugar checks.
Katie was diagnosed with Neonatal Diabetes at 10 days old and started on glyburide that very day. While we had a lot of experience with this rare disease with Andy, dealing with a newborn with diabetes was a different skill set altogether. . . Continue reading