Adventures in KAndylaND

I Can Do It Myself!

As Katie has grown up we have had both moments of clarity where we are absolutely sure she is displaying behavior that is typical for her age and moments if confusion where we are just not sure what’s normal. This …

Hopes and Fears Pop Up in Dreams

I know that dreams can have a lot of meaning and sometimes they are a little mysterious and hard to understand.   Then at other times, what you dream is very straightforward and hits you in the face.  Last night I …

Developmental Ups and Downs

We were dealt a blow yesterday.  Katie is behind.  When Andy was on insulin so many years ago, we knew he was behind.  He wasn’t doing anything he should be doing right on track.  As a parent, you always want the best for your child, but you also instinctively “know” when something is wrong. 

Cheers and Fears

As I walked out the door with Andy this morning, I hesitantly let go of his hand.  Just yesterday I was telling Dan how we had been practicing every morning with walking next to Mommy instead of holding my hand …

The Conundrum and the Experiment

a cross-post from my other blog Having 2 children with a rare type of diabetes and a history of Type 2 diabetes in both mine and my husband’s family, you would think we would eat a very healthy diet.  Wrong!  …

When Diabetes Doesn’t Make Sense

Well, I have to say, after 4 plus years of dealing with glyburide, I thought I was beginning to understand how my kids’ bodies work.  I didn’t think anything could catch me off guard.  However, Diabetes in general does things to a body that even doctors still can’t explain.

Snow Tickles

As adults, we have all probably experienced snow falling at one time or another in our lives.  But I never gave much thought to all of the sensations that go along with experiencing snow for the first time.  That all changed today when Andy and I stood waiting for the bus.

Parenthood Episode Rings True

I think any parent of a child with a chronic illness or a misunderstood syndrome will understand the episode of Parenthood that aired tonight.  Adam’s son Max has Asperger’s and a man in a grocery store called Max a retard so Adam punches the guy.

Moving (and other life events)

So it’s been a few months since I’ve posted and a LOT has happened in those few months.  Andy became almost completely potty trained in August just before he began Kindergarten.  Katie celebrated her first birthday.  Both kids increased their …

The Never Ending Hallway : Potty Training the 5 Year Old

Warning:  There may be graphic details in this post.  Read at your own risk. It’s been a while since I’ve posted and there is good reason.  Our lives have been really crazy in the last few months.  Andy graduated preschool …

The Dilemma of ER Visits

One of the worst parts of having a child with a rare disease is the dilemma of having to take that child to a new doctor when there is an emergency.  Andy fell off a chair on Friday night and …

Katie’s weight

I know for most parents, and mothers especially, the months of watching the scale move up while they’re pregnant is replaced by watching the scale move up when their baby is born.  Due to the recommendations from the American Pediatric …